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Opinions of Autism
Author: Philip Lemaster
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This study investigates the public’s perceptions of families who have children with autism. Specifically we are interested in gathering the opinions, feeling and perceptions of parents and caretakers of children with autism spectrum disorders concerning how they believe other people in their communities perceive them and whether they are getting the support they need from their families and community. The study is being conducted by psychology students at Marietta College, and is under the direction of Professor of Psychology Dr. Mark Sibicky.

Your participation in this study is completely voluntary and consists of answering a questionnaire about your opinions, feeling and attitudes about your experience of taking care of a child with autism. All the information we collect will be confidential and your answers to the questions will not be identified with you in any way. All information we collect will be grouped together and used for scientific purposes.

Your participation is voluntary and you have the right to stop answering any questions and withdraw your consent to participate at any time.

We hope you will provide us with your honest opinions and we hope to collect responses to all the questions if possible. Our hope is to collect valuable scientific data concerning how the public and communities perceive parents and caretakers of children with autism.

The undergraduate student researchers conducting this study are Ms. Allison Paytosh (anp001@marietta.edu) and Mr. Philip Lemaster (pcl001@marietta.edu). The faculty member supervising this research is Dr. Mark Sibicky (mark.sibicky@marietta.edu; office phone (740) 376- 4762). If you have any questions or concerns about your participation in the study, feel free to contact any of the researchers. This study has been reviewed and approved by the Marietta College Human Subjects Committee.

I understand my consent to participate is voluntary. I understand I can withdraw my participation and not complete the questionnaire at any time. I hereby consent to participation in the study.
1    I am
male female other
2    I am the child's
biological parent guardian
other
3    My child's age is
4    My child's diagnosis is
autism disorder
Asperger's disorder
pervasive developmental disorder
attention deficit disorder
attention deficit hyperactivity disorder
high functioning autism
other
5    My child is
mainstreamed in a public or private school
enrolled in a specialized school
home schooled
other
Strongly agree Agree Mildly agree Neutral Mildly disagree Disagree Strongly disagree Not applicable
6Others pity me because I have a child with autism.
7After learning my child has autism, my reputation in society has diminished.
8People in society perceive autism negatively.
9Others think I am to blame for my child’s autism.
10Others stare at me when I am with my child.
11Others have made derogatory comments about my parenting skills.
12I have been discriminated in my community because my child has autism.
13I would have had better chances in life if my child had not been diagnosed with autism.
14People avoid me when I am with my child with autism.
1510. I have been talked down to because my child has autism.
16I have lost close friends because of my child’s autism.
17I do not feel that I can care for my child alone.
18When first learning of my child’s diagnosis I felt lost and overwhelmed.
19When first learning of my child’s diagnosis I worried I would be unable to sufficiently care for my child.
20After first learning of my child’s diagnosis, people looked down upon me for feeling sad and lost.
21My child will never reach the goals I have envisioned because of his or her autism.
22My child’s autism has caused tension between my spouse and me.
23My child’s autism has caused a separation in my marriage.
24My child’s autism has caused my spouse and me to divorce.
25My family is supportive of how I care for my child with autism.
26My other children express they feel ignored or left out because I focus so much on my child with autism.
27My spouse express he/she feels ignored because I spend so much time with my child with autism.
28My partner and I agree on the forms of treatment to use for my child with autism.
29Family members blame me for my child’s autism.
30I am open about disclosing that my child has autism.
31Dealing with my child’s autism has made me a stronger person.
32I am more accepting of others after caring for my child with autism.
33People have been accepting of my child’s autism.
34I am proud of my child in spite of his or her autism.
35I am proud of my ability to be a parent of a child with autism.
3631. My child’s future looks bright.
37The government adequately helps me with my child with autism.
38I have struggled when trying to receive financial support from the state for my child’s care.
39I have been embarrassed in public because of my child with autism.
40I am to blame for my child’s autism.
41I am ashamed of my child’s autism.
42I am angry about the way people have reacted to my child’s autism.
43People think less of me because I have a child with autism.
44I worry about telling people that my child has autism.
45Health professionals have been helpful with my child’s autism.
46There were times professionals in healthcare made me feel inferior when discussing my child’s autism.
47Newspapers, television, and other forms of media take a balanced and fair view on autism.
48The media misrepresents autism disorder to the public.
49Research on autism and the other spectrum disorders has a bright future.
50There is not enough research being done on autism disorder to find a cause.
51I worry about receiving adequate therapy for my child’s autism.
52I am scared about how other people would treat my child if I were not able to care for him/her.
53I am hesitant to ask for help or let others take care of my child.
54My child’s school has been willing to provide adequate services for my child.
55Teachers and administrators avoid me while I am at my child’s school.
56Teachers and administrators avoid questions pertaining to my child.
57My child’s school does not have the resources (e.g. classroom environment, special educators) to care for his/her needs.


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